Childhood Lupus: Causes, Symptoms, and Remedies

In the face of a lupus diagnosis for a child, it's essential for parents and caregivers to understand the steps they can take to help manage the condition. Lupus, an autoimmune disease, can present various challenges, but with the right care and support, children with lupus can lead healthy, fulfilling lives.

First and foremost, it's crucial to protect children with lupus from the sun. This means encouraging them to wear sunscreen or sun-protective clothing to prevent sunburns and reduce the risk of flares.

Vaccinations play a vital role in maintaining a child's health, and this is especially true for children with lupus. Non-live vaccinations provide important protection, but live attenuated vaccines are not recommended for those taking immunosuppressive medication.

Managing lupus involves more than just medication. Parents and caregivers can help by promoting a well-balanced diet and regular physical activity. These habits are essential for overall health and can help reduce the occurrence of flares.

Medications for lupus work by reducing inflammation and calming the overactive immune system. The specific type of medication will depend on the child's symptoms and the severity of their lupus. Some common medications include corticosteroids, anticoagulants, anti-inflammatories, antimalarials, biologics, and DMARDs.

However, it's important to note that corticosteroids can weaken bones, so an adequate intake of calcium and vitamin D is essential. Additionally, children taking immunosuppressive medication are at an increased risk of infection, so it's important to take steps to avoid infection, such as washing hands regularly and avoiding crowds during flu season.

The Lupus Foundation of America provides a searchable directory of lupus support organizations in each state, offering resources for families dealing with lupus. Online support organizations, such as The Mighty, LupusConnect, Smart Patients, My Lupus Team, Kaleidoscope Fighting Lupus, and Lupus Warriors, also offer invaluable support and resources.

While lupus in children can be severe and even fatal, it can also be mild and manageable. Some children with lupus will need medication for life, while others have mild to moderate disease with minimal symptoms.

Typical symptoms of lupus in children include fatigue, decreased performance, weakness, concentration problems, mood swings, fever, headaches, abdominal pain, weight loss, hair loss, skin changes, sensitivity to sunlight, joint pain, muscle complaints, mouth ulcers, anemia, swollen lymph nodes, pleuritis, and potentially organ-specific issues such as kidney or lung problems and heart inflammation.

By understanding the challenges and taking the necessary steps to manage lupus, parents and caregivers can help ensure their children lead healthy, active lives despite their diagnosis.