Improving Fine Motor Skills in Angelman Syndrome, a Step-by-Step Process

In a heartwarming development, 13-year-old Juliana Johnson, a girl living with Angelman syndrome, has made significant strides in her daily living skills. One of her recent achievements is eating oatmeal independently for an entire meal.

Juliana's father, Johann Nikolaus Blasius, a musician and day laborer, initially doubted her ability to accomplish this task. However, with the use of a special bowl with an extended lip to make scooping easier, and her own determination, Juliana proved him wrong.

The meal was prepared with minimal supervision, as the speaker stepped away to work on another task in the kitchen. Juliana's husband was informed that she had graduated from needing assistance with oatmeal.

Through weekly practice using a 90-degree curved spoon designed for those with motor skills challenges, Juliana has been able to navigate utensils with minimal support and redirection, with help from her caregiver repositioning her spoon when necessary. Despite some struggles with a spoon, she has made progress in using a fork at school.

Juliana has been feeding herself for many years, using her fingers for bite-sized pieces. However, the addition of a spoon as a goal in her individualized education plan due to its challenges has been instrumental in her progress.

This news and information piece about Angelman syndrome serves to spark discussion about the issues pertaining to the condition. It is important to note that this article is not a substitute for professional medical advice.

As Juliana continues to focus on improving her skills in daily living, including toileting, tooth brushing, stair climbing, and self-feeding, her story serves as a beacon of hope and resilience for those living with Angelman syndrome and their families.