Prioritizing personal well-being becomes increasingly crucial for one's guardianship as age advances.

In a heartfelt and honest account, Marisa Wexler, a dedicated caregiver to her 13-year-old daughter Juliana who lives with Angelman syndrome, shares her experiences and strategies for maintaining her own well-being.

Marisa recognises the importance of self-care for her ability to care for Juliana effectively. Her goal is not an unrealistic perception of a perfect body, but rather to age gracefully and manage Juliana's physical care needs.

Juliana's health condition requires Marisa to prioritise her own well-being to continue providing care. Marisa's strategy for mental health includes not taking on too much, adopting a simpler lifestyle, and balancing caregiving with personal interests.

Physical health management, however, proves to be more challenging. Marisa has neglected some aspects of her health over the years, but is now focusing on improving it. She has been using an online exercise program due to changes in her work schedule, and prioritises getting back on track with her exercise routine when it is interrupted.

The absence of taking supplements affected some of Marisa's test results, as pointed out by her doctor. Marisa has researched both traditional (e.g., group homes) and non-traditional (e.g., sibling care) care methods for Juliana's future well-being, a challenge faced by all special-needs parents.

Marisa's commitment to self-care extends to her personal health management, including setting her own doctor appointments and taking medication as prescribed. She has hobbies and personal goals that help her feel more like an average mom.

It's important to note that the article does not provide specific details about Marisa's exercise routine or supplement regimen. The statement emphasises that Angelman Syndrome News is a news and information website about the disease, not a provider of medical advice, diagnosis, or treatment.

The article also includes a disclaimer stating that the opinions expressed do not represent those of Angelman Syndrome News or its parent company, Bionews. The purpose of the article is to spark discussion about issues pertaining to Angelman syndrome.

Marisa has a newsletter about Angelman Syndrome that subscribers can sign up for. Organizations providing traditional and non-traditional care for adults with Angelman syndrome near Marisa may include specialized clinics, developmental disability agencies, local chapters of the Angelman Syndrome Foundation, and community-based caregiving programs, but specific local providers would need to be identified based on Marisa's exact location.

A news article discusses tools for measuring the severity of Angelman syndrome from the perspectives of clinicians and caregivers, shedding light on the ongoing research and support available for families like Marisa's.

Prioritizing personal well-being becomes increasingly crucial for one's guardianship as age advances.