Unveiling an Innovative Method for Managing Angelman Syndrome Meltdowns

In a heartwarming yet challenging tale, a dedicated author is navigating the complex world of Angelman syndrome with Juliana, a young girl who brings joy and challenges in equal measure.

Juliana, who has Angelman syndrome, may understand more than she can express or communicate. This condition, characterised by developmental delays, seizures, and frequent tantrums, presents unique challenges for the author. Dealing with Juliana's tantrums, particularly, has been a work in progress.

Last weekend, Juliana woke up grumpy and had a prolonged tantrum. The author found themselves in a familiar situation, trying to manage Juliana's emotions. On this occasion, they sat Juliana on the edge of her safety bed in her bedroom. The author remained calm, a departure from previous occurrences, and left the room after saying, "When you're ready, come eat."

To the author's relief, the crying from Juliana ended almost immediately after the author left the room. The door to Juliana's bedroom was left open, and a short while later, Juliana exited her room, smiling and giggling in the hall.

The author's teacher has observed that Juliana's tears are used for control, a manipulative tactic that is common in children with Angelman syndrome. The best strategy to manage Juliana's tantrums, therefore, is to shut down the episode as soon as it starts.

Irritability and outbursts can be a part of an Angel's behaviour, as Juliana's case demonstrates. However, the author has started to challenge Juliana's tantrums, finding this approach to be more effective in managing the situation.

The author finds dealing with Juliana's tantrums particularly challenging due to the medical difficulties associated with Angelman syndrome. Yet, they find solace in the moments of joy that Juliana brings, such as the breakfast call that was met with Juliana eventually making her way towards the author.

Despite the challenges, the author feels more rested when they have no family commitments. The author's resilience and patience are commendable, and they continue to strive for a better understanding of Juliana and her unique needs.

Unfortunately, the search results do not provide the name of Juliana’s father who also has Angelman syndrome. Regardless, the author's journey with Juliana serves as a testament to the power of patience, understanding, and love in navigating the complexities of life with a child who has special needs.